Travis Kelce begs Chris Jones to end giant Chiefs Super Bowl repeat distraction
Kansas City Chiefs tight end Travis Kelce begged his friend Chris Jones to end a contract dispute that could distract from a Super Bowl repeat.
2023-09-01 22:15
What ACC expansion means for remaining Pac-12 schools without a home
With Cal, Stanford and SMU joining the ACC, what does this mean for the final two remaining Pac-12 holdovers in Oregon State and Washington State?
2023-09-01 21:45
Samuel Newey: British volunteer killed in Ukraine a 'selfless warrior'
The family of Samuel Newey says they have been left devastated and heartbroken by his death.
2023-09-01 21:24
The worst Champions League 'groups of death' ever
The toughest Champions League groups of death in the competition's history, with the likes of Real Madrid, Manchester United and Manchester City frequently populating these fiendishly tricky matchups
2023-09-01 21:23
Woman bullied over skin blistering disorder writing books to stop other children ‘feeling like freaks’
A woman who was born with a rare inherited skin blistering disorder which caused her to get “bullied” and feel “like a freak” throughout her childhood and teenage years, as well as forcing her onto a soft food diet of “bananas and custard” for weeks at a time, now writes inclusive children’s books with a focus on disability to encourage “other children to grow up with confidence”. Vie Portland, a 52-year-old confidence coach, author and speaker from Winchester, was born with epidermolysis bullosa simplex generalised intermediate but was not formally diagnosed with the skin condition until she was 28. According to the NHS, epidermolysis bullosa (EB) is a rare inherited skin disorder that causes the skin to become very fragile, and any trauma or friction to the skin can cause painful blisters. Vie is yet to find a treatment that helps her condition, and her feet are regularly covered with huge internal blisters which feel like she has “stones under (her) skin.” Her condition even means that she cannot eat “anything acidic or too peppery” and often spends weeks eating “just bananas and custard”. She has also developed thoracic outlet syndrome, chronic bursitis, and often has spasms, because of walking with a limp to try to ease the pain. Now, Vie writes inclusive children’s books to raise awareness about living with a disability, because she grew up “afraid that there was no one else like (her)”, and hopes to write a book about someone with her condition next. Vie told PA Real Life: “So it feels like I’ve got stones under my skin all the time on my feet and it doesn’t matter how much you try to explain that to someone people just don’t get it. “Even things like if I meet friends for a drink in a lovely pub garden – I’ll be in agony because of walking on gravel and it takes so much energy out of me. “I can’t eat anything acidic or too peppery – sometimes I have to eat just bananas and custard for weeks.” Vie was born with the skin condition, saying: “I was born with no skin on my bottom and had some skin missing on my left foot. “The charity that works with people that have EB wasn’t around then – I spoke to someone recently from Debra, the charity, and they said if you looked at all the people on a double-decker bus, you’d expect to find at least one person with psoriasis. “But, you’d have to wait for over 700 buses before you met someone with EB.” As a child, Vie regularly had huge blisters all over her feet and the back of her heels. She explained: “I remember wearing jelly shoes one summer, and heat and friction are two of my triggers. “Throughout the day, blisters grew around the rubber shoes and I had to have the pair of shoes cut off my feet – it was excruciating.” When Vie was a teenager, she was very self-conscious of her condition, she explained: “I was in constant pain, and I struggled with all shoes and walking anywhere. “We’re always told not to pop blisters, but when you have EB they tell you to pop them because they get so big. “I didn’t know that at the time and it was just so painful. “People were noticing how I walk and I was embarrassed to show my feet – I didn’t have a normal childhood because of this. “Even something as simple as opening a bottle makes several layers of skin come off and cause me to have raw skin all over my hands, I was told this was weird by other people.” Doctors were baffled by Vie’s condition, over the years, she was told she had different types of eczema and even that she was allergic to her own sweat. But, at age 28, she was diagnosed with EB by a dermatologist in London. She said: “I just grew up believing that it was my fault and I was afraid that there was no one else like me.” “It all just made sense. “They even took pictures of my feet for a medical journal because it was so rare.” After getting her diagnosis, Vie began researching the charity DEBRA, which specialises in EB. She said: “I started finding out that there were people like me – it was amazing, growing up, I was bullied and felt like a freak.” Since then, Vie has sadly not been able to find a treatment that helps her condition. “There’s no cure for EB but things have moved on a lot over the past 20 years,” she said. “We have special types of dressings and creams which can help alleviate the pain.” On top of this, because Vie has been walking “unusually” for most of her life, she has developed thoracic outlet syndrome, chronic bursitis, and often has spasms. Vie said: “It can be frustrating at times because it just feels like no one will ever understand what it is like. “For most people, blisters are a bit painful, but it’s all right, but for me, it’s one of the worst pains in the world.” Now, Vie is focussing on raising awareness about living with a disability, and has recently written two inclusive children’s books called ‘Where Are We Going?’ and ‘Who Am I?’. She said: “I want other children to grow up with confidence and not to feel like a freak like me. “Children aren’t born with prejudice and I think it’s really important to teach them about all of our amazing cultures and worlds. “In my books, I don’t explicitly say the character is disabled until the discussion questions at the end – I want the character to be accepted and not defined by their disability. “I think people have more in common with each other than things that are different, and that’s a beautiful thing. “I’m hoping to write a book about someone with my condition – that’s my next plan.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer?
2023-09-01 21:23
USMNT gossip: McKennie to stay, Cardoso to stay, Pefok joins Gladbach
It is transfer deadline day in Europe but the USMNT gossip is that the players linked with moves could be set to stay at their clubs.
2023-09-01 20:59
Country Garden: How bad are the Chinese property developer's debt problems?
By Xie Yu HONG KONG (Reuters) -China is grappling with a slowdown that has rattled global markets, with the spotlight
2023-09-01 20:57
Scientists have discovered a new 'Antarctica' accent
Antarctica might be the only continent on Earth with no natural human habitation, but it’s emerged that an “Antarctica accent” is very much a thing. Despite having no locals, thousands of scientists have made up an ever-changing population in research stations over the years. The continent is so isolated and the level of interaction between researchers is so intense, that a common accent is beginning to emerge there despite people coming from different parts of the world. At its busiest points in the year during the summer, Antarctica is home to around 5,000 people. Only around 1,000 people live there during the winter months. The idea of accents changing due to human interaction on Antarctica is no different to the phenomenon seen throughout history at a glacial pace. However, given the very specific sample size, it’s an opportunity for scientists to study it at a much quicker rate and on a much smaller scale. Experts at the Ludwig Maximilian University of Munich published a study in 2019 which focused on the change in accents observed in 11 people who took part in the British Antarctic Survey. @human.1011 There’s an Antarctic Accent! #language #linguistics #english #antarctica Of the 11 who were studied, eight came from England, one from the US, one from Germany and one from Iceland. Their voices were recorded every six weeks, and the team found that over time they developed longer vowel sounds. There was a physical change too, with participants pronouncing the “ou” sound in the front of their mouths rather than the back of their throats. Speaking to IFL Science, Jonathan Harrington, study author and Professor of Phonetics and Speech Processing at the Ludwig-Maximilians University of Munich said: "The Antarctic accent is not really perceptible as such – it would take much longer for it to become so – but it is acoustically measurable. "It's mostly an amalgamation of some aspects of the spoken accents of the winterers before they went to Antarctica, together with an innovation. It's far more embryonic [than conventional English accents] given that it had only a short time to develop and also, of course, because it's only distributed across a small group of speakers.” Sign up for our free Indy100 weekly newsletter Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.
2023-09-01 20:52
Robinhood to buy back Bankman-Fried's stake for $605.7 million from US govt
(Reuters) -Robinhood said on Friday it had entered into a share repurchase agreement with the United States Marshal Service(USMS) for
2023-09-01 20:51
Spanish men's national team manager Luis de la Fuente apologizes for applauding Luis Rubiales' defiant speech
Luis de la Fuente, the manager of the Spanish men's national team, has apologized for visibly applauding the speech of beleaguered soccer chief Luis Rubiales at an assembly last Friday.
2023-09-01 20:48
Dutch government to press ahead with Schiphol flight cap as airlines protest
By Toby Sterling AMSTERDAM (Reuters) -The Dutch government is set to press ahead with plans to cap the number of
2023-09-01 20:22
3 possible closing lineup ideas for Phoenix Suns next season
The Phoenix Suns have an absurd amount of offensive talent and the potential to create some fascinating closing lineups.
2023-09-01 19:54
