A woman who was born with a rare inherited skin blistering disorder which caused her to get “bullied” and feel “like a freak” throughout her childhood and teenage years, as well as forcing her onto a soft food diet of “bananas and custard” for weeks at a time, now writes inclusive children’s books with a focus on disability to encourage “other children to grow up with confidence”. Vie Portland, a 52-year-old confidence coach, author and speaker from Winchester, was born with epidermolysis bullosa simplex generalised intermediate but was not formally diagnosed with the skin condition until she was 28. According to the NHS, epidermolysis bullosa (EB) is a rare inherited skin disorder that causes the skin to become very fragile, and any trauma or friction to the skin can cause painful blisters. Vie is yet to find a treatment that helps her condition, and her feet are regularly covered with huge internal blisters which feel like she has “stones under (her) skin.” Her condition even means that she cannot eat “anything acidic or too peppery” and often spends weeks eating “just bananas and custard”. She has also developed thoracic outlet syndrome, chronic bursitis, and often has spasms, because of walking with a limp to try to ease the pain. Now, Vie writes inclusive children’s books to raise awareness about living with a disability, because she grew up “afraid that there was no one else like (her)”, and hopes to write a book about someone with her condition next. Vie told PA Real Life: “So it feels like I’ve got stones under my skin all the time on my feet and it doesn’t matter how much you try to explain that to someone people just don’t get it. “Even things like if I meet friends for a drink in a lovely pub garden – I’ll be in agony because of walking on gravel and it takes so much energy out of me. “I can’t eat anything acidic or too peppery – sometimes I have to eat just bananas and custard for weeks.” Vie was born with the skin condition, saying: “I was born with no skin on my bottom and had some skin missing on my left foot. “The charity that works with people that have EB wasn’t around then – I spoke to someone recently from Debra, the charity, and they said if you looked at all the people on a double-decker bus, you’d expect to find at least one person with psoriasis. “But, you’d have to wait for over 700 buses before you met someone with EB.” As a child, Vie regularly had huge blisters all over her feet and the back of her heels. She explained: “I remember wearing jelly shoes one summer, and heat and friction are two of my triggers. “Throughout the day, blisters grew around the rubber shoes and I had to have the pair of shoes cut off my feet – it was excruciating.” When Vie was a teenager, she was very self-conscious of her condition, she explained: “I was in constant pain, and I struggled with all shoes and walking anywhere. “We’re always told not to pop blisters, but when you have EB they tell you to pop them because they get so big. “I didn’t know that at the time and it was just so painful. “People were noticing how I walk and I was embarrassed to show my feet – I didn’t have a normal childhood because of this. “Even something as simple as opening a bottle makes several layers of skin come off and cause me to have raw skin all over my hands, I was told this was weird by other people.” Doctors were baffled by Vie’s condition, over the years, she was told she had different types of eczema and even that she was allergic to her own sweat. But, at age 28, she was diagnosed with EB by a dermatologist in London. She said: “I just grew up believing that it was my fault and I was afraid that there was no one else like me.” “It all just made sense. “They even took pictures of my feet for a medical journal because it was so rare.” After getting her diagnosis, Vie began researching the charity DEBRA, which specialises in EB. She said: “I started finding out that there were people like me – it was amazing, growing up, I was bullied and felt like a freak.” Since then, Vie has sadly not been able to find a treatment that helps her condition. “There’s no cure for EB but things have moved on a lot over the past 20 years,” she said. “We have special types of dressings and creams which can help alleviate the pain.” On top of this, because Vie has been walking “unusually” for most of her life, she has developed thoracic outlet syndrome, chronic bursitis, and often has spasms. Vie said: “It can be frustrating at times because it just feels like no one will ever understand what it is like. “For most people, blisters are a bit painful, but it’s all right, but for me, it’s one of the worst pains in the world.” Now, Vie is focussing on raising awareness about living with a disability, and has recently written two inclusive children’s books called ‘Where Are We Going?’ and ‘Who Am I?’. She said: “I want other children to grow up with confidence and not to feel like a freak like me. “Children aren’t born with prejudice and I think it’s really important to teach them about all of our amazing cultures and worlds. “In my books, I don’t explicitly say the character is disabled until the discussion questions at the end – I want the character to be accepted and not defined by their disability. “I think people have more in common with each other than things that are different, and that’s a beautiful thing. “I’m hoping to write a book about someone with my condition – that’s my next plan.” Read More Charity boss speaks out over ‘traumatic’ encounter with royal aide Ukraine war’s heaviest fight rages in east - follow live Fraser Franks undergoing heart surgery – four years after ‘hidden’ condition cut short football career 4 viral TikTok make-up trends you’ll actually want to try Childhood Cancer Awareness Month: What are the warning signs that your child might have cancer?

By Eliana Raszewski BUENOS AIRES (Reuters) -Argentina's markets face an election hangover on Monday after a shock primary election win

Boxer and OnlyFans model Daniella Hemsley will not take part in this week’s Kingpyn Boxing final after being barred for her topless celebration. However, the 22-year-old has released a statement denying she had been banned and claiming that she stepped down voluntarily. Hemsley flashed the crowd after winning her first boxing match over the weekend and faced criticism for doing so. Now, The Sun reports that Hemsley will not take part in the next stage of the competition. Kingpyn Boxing reportedly faced a statement that reads: "As we strive to bring fans the best influencer boxing events possible, we accept that Saturday’s post-fight incident may have offended some viewers and appreciate that this incident didn’t meet the standards expected from Kingpyn fight nights. Sign up to our free Indy100 weekly newsletter “We apologize fully to anyone upset during the broadcast. The fighter involved in the incident will not be appearing in the Final event.” Hemsley fought Ms Danielka, also known as Aleksandra Ola Daniel, on Saturday (July 15). After securing the win, Hemsley exposed her breasts inside the ring during the live TV coverage. Speaking after the fight, Hemsley claimed she had permission to do so. Speaking to Alpha Plug, she said: “I got approval from the promoter, and I was only going to do it if I won, and I did and I got over-excited, and yeah, why not?” Hemsley later wrote on Instagram: "I DID IT! Ola definitely didn’t have a walk in the park (her words), but Big respect, that was true WAR! "I also apologies [sic] to anyone who may have felt offended by my excitement, I did actually have tassels on but the sweat stuck them to my bra lol." She has since denied that she has been banned, posting on Instagram: “I just want to personally address the current media speculation. I am NOT banned from Kingpyn, I have made a choice to step down from the Finals fight to take some time away from the heavy training camps, recover some [injuries] and work on my business. “This is only the beginning of my boxing journey and I plan to be back and fighting again in the Autumn/Winter. “I adore all of my fans and thank you for all of the support and love. I see you all x x.” Promoter Eddie Hearn was one of the figures to criticise Hemsley, claiming that her actions had set women’s sport back years. “Unfortunately, we now live in a world where role models, or influencers, are not necessarily doing things that the older generation, which I class myself as, or parents would want your kids to see or think is acceptable,” he told Boxing Social. "I F**KING HATE IT!" - Eddie Hearn GOES MENTAL on Kingpyn Incident, Baumgardner & Matchroom Schedule www.youtube.com Daniella says she was given permission before the bout to do her celebration. Speaking to Alpha Plug after the fight, she said: “I got approval from the promoter, and I was only going to do it if I won, and I did and I got over-excited, and yeah, why not?” Have your say in our news democracy. Click the upvote icon at the top of the page to help raise this article through the indy100 rankings.

MADRID (Reuters) -Spain's Socialist Prime Minister Pedro Sanchez and Alberto Nunez Feijoo, leader of the conservative People's Party (PP), held

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